par Servais, Julie ;Maddy, Herby ;Vanhoutte, Bram ;Godin, Isabelle
Référence Strengthening the standards: communities and research(5th EPATH Conference: Avril 2023: Killarney - Irlande)
Publication Publié, 2023-05-01
Publication dans des actes
Résumé : Objective: The main objective of this review is to identify the methodological and ethical challenges associated with co-creation and participatory research with young people from gender minorities. A secondary objective is to identify areas of concern when parental consent is required for young people who have not yet disclosed their gender identity to their guardians. This may simply deter some young people from participating in the research. It also means that our research would only include young people in good terms with their guardians regarding to their gender identity.Introduction: Conducting research with young people from gender minorities is essential to explore and understand their experiences and be able to propose, implement and adapt ‘services’ in the broadest sense to meet their needs. However, there is little research conducted with trans* young people under the age of 18, which can undermine the relevance of prevention and intervention strategies. Most of the existing research is either retrospective and therefore makes it more difficult to take account societal changes, or requires the consent of guardians, which raises serious ethical and practical issues such as the systematic exclusion of a significant subgroup of trans* young people who may be most in need of support. The issue of obtaining parental or guardian consent for trans* minors arise in the specific context of participatory research. Obtaining parental consent may jeopardize their safety, well-being, or privacy, for example if their family is not supportive or not aware of their social transition. This puts young people's rights to autonomy, privacy, and freedom in tension with parents' rights to protect their children.Inclusion criteria: Given the diversity and evolution of terminology used when discussing gender minorities and gender identity, we should broaden the terminology used in the search to identify as much relevant literature as possible. Due to the ratification of the Yogyakarta Principles in 2006, our systematic review will include articles published from 2006 onward. In this review, we will consider studies that focused on qualitative data including, but not limited to, designs such as exploratory descriptive, phenomenology, grounded theory, ethnography, action research, co-creation and, trans* studies. Qualitative components of mixed methods studies will also be included.Methods: The following databases will be searched: MEDLINE (PubMed), CINAHL (EBSCO), Embase (Elsevier), Web of Science (webofknowledge.com). ProQuest Dissertations, Theses Sciences and Open Grey will be searched for grey literature. Studies will be assessed independently by two reviewers and disagreements will be resolved through discussion or with a third reviewer. Data extraction will be completed by two reviewers. Qualitative research findings will, where possible be pooled using JBI SUMARI with a meta- aggregation approach.Systematic review registration number: PROSPERO CRD42022368360

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