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What added value does Patient and Public Involvement (PPI) in oncology research bring to cancer patients and what are the challenges in realizing it? A mixed-methods cross-sectional study in four PPI groups in Flanders (Belgium).

par Taels, Brent;Horicks, Florence ;Léonard, Silke SL;Lalova-Spinks, Teodora TLS;Van Zeeland, Ine;Dirkx, Willy;Bax, Lyzette;Carton, Bernard;De Regge, Melissa
Référence Research involvement and engagement, 12, 1
Publication Publié, 2026-07-01

Article révisé par les pairs

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Résumé :

Despite group-based patient and public involvement (PPI) initiatives in oncology research being a growing trend, little research has been conducted on the added value of PPI according to the personal experiences of its contributors. This study aims to describe the personal experiences of PPI group members and coordinators in Flanders (Belgium) to investigate the dimensions of individual and collective added value of group-based PPI initiatives as well as the challenges in realizing this added value.