Titre:
  • Sickle cell disease: embedding patient participation into an international conference can transform the role of lived experience
Auteur:Pellegrini, Mariangela; Chakravorty, Subarna; del Mar Manu Pereira, Maria; Gulbis, Béatrice; Gilmour-Hamilton, Catriona; Hayes, Sandy; De Montalembert, Mariane; Inusa, Baba Psalm Duniya; Colombatti, Raffaella; Roy, Noémi Ba
Informations sur la publication:Orphanet journal of rare diseases, 18, 1, 341
Statut de publication:Publié, 2023-12
Sujet CREF:Génétique clinique
Pharmacologie
Sciences bio-médicales et agricoles
Mots-clés:International congress
Patient education
Patient therapeutic education
Patients workshop
Public patients involvement in Research
Sickle cell disease
Note générale:SCOPUS: ar.j
Langue:Anglais
Identificateurs:urn:issn:1750-1172
info:doi/10.1186/s13023-023-02951-8
info:scp/85175677295
info:pmid/37908000