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Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases

par Post, Annemarie A.E.M.;Klockgether, Thomas;Landwehrmeyer, Georg Bernhard;Pandolfo, Massimo ;Arnesen, Astri;Reinhard, Carola;Graessner, Holm
Référence Orphanet journal of rare diseases, 16, 1, 135
Publication Publié, 2021-12

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Titre:	Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases
Auteur:	Post, Annemarie A.E.M.; Klockgether, Thomas; Landwehrmeyer, Georg Bernhard; Pandolfo, Massimo; Arnesen, Astri; Reinhard, Carola; Graessner, Holm
Informations sur la publication:	Orphanet journal of rare diseases, 16, 1, 135
Statut de publication:	Publié, 2021-12
Sujet CREF:	Génétique clinique
	Pharmacologie
	Sciences bio-médicales et agricoles
Mots-clés:	Patient involvement
	Rare diseases
	Research themes
Note générale:	SCOPUS: ar.j
Langue:	Anglais
Identificateurs:	urn:issn:1750-1172
	info:doi/10.1186/s13023-020-01641-z
	info:scp/85102823685
	info:pmid/33736655