par Geerts-Crabbé, Laura;Antoine, Pascal;Brugallé, Elodie;Ghoumid, Jamal;Bellengier, Laurence;Edery, Patrick;Heron, Delphine;Manouvrier-Hanu, Sylvie;Fantini-Hauwel, Carole 
Référence Journal of genetic counseling, 28, 5, page (1011-1020)
Publication Publié, 2019-10-01
Référence Journal of genetic counseling, 28, 5, page (1011-1020)
Publication Publié, 2019-10-01
Article révisé par les pairs
| Titre: |
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| Auteur: | Geerts-Crabbé, Laura; Antoine, Pascal; Brugallé, Elodie; Ghoumid, Jamal; Bellengier, Laurence; Edery, Patrick; Heron, Delphine; Manouvrier-Hanu, Sylvie; Fantini-Hauwel, Carole |
| Informations sur la publication: | Journal of genetic counseling, 28, 5, page (1011-1020) |
| Statut de publication: | Publié, 2019-10-01 |
| Sujet CREF: | Génétique clinique |
| Mots-clés: | adaptation difficulty |
| beliefs | |
| carrier testing | |
| congenital physical disability | |
| coping strategies | |
| disability | |
| distress | |
| genetic counselling | |
| genetic testing | |
| health behavior | |
| lived experience | |
| medical adherence | |
| Nail-Patella syndrome | |
| poor self-esteem | |
| predictive genetic testing | |
| quality of life | |
| risk perception | |
| subjective experience | |
| Note générale: | SCOPUS: ar.j |
| Langue: | Anglais |
| Identificateurs: | urn:issn:1059-7700 |
| info:doi/10.1002/jgc4.1153 | |
| info:scp/85069701651 | |
| info:pmid/31313463 |
