Article révisé par les pairs
Résumé : Background: The objectives of this study were to determine quality of life (QoL) issues that are relevant to thyroid cancer patients cross-culturally, and to identify those with highest relevance to them in addition to the more general issues covered by the core European Organisation for Research and Treatment of Cancer QoL questionnaire (EORTC QLQ-C30). Methods: A systematic literature search provided a list of potentially relevant QoL issues to supplement the core questionnaire EORTC QLQ-C30, which is widely used in research and in care and addresses QoL issues relevant to all groups of cancer patients. A panel of experts revised this list, and thyroid cancer patients rated the issues regarding their relevance for QoL by selecting the 25 issues that they would include in a thyroid cancer- specific QoL module. Results: The literature search and expert discussion provided a list of 71 QoL issues that was rated by thyroid cancer patients (n = 110) from seven countries. All issues were of high priority to at least some of the patients. The most frequently selected issues were sudden attacks of tiredness, exhaustion, quality of sleep, employment, social support, fear of cancer progression, fear of second operation, difficulties swallowing, and globus sensation. Conclusions: Thyroid cancer patients cross-culturally rate fatigue-related issues as highly important for their QoL, calling for increased efforts to find successful treatments for this problem. Vocational rehabilitation is also highly relevant for them and should therefore be an important aim of multidisciplinary care. The third important area of concern is psychological issues, especially fear of progression and of additional treatments.

Documents en relation

DI-fusion

  • International Phase IV Field Study for the Reliability and Validity of the European Organisation for Research and Treatment of Cancer Thyroid Cancer Module EORTC QLQ-THY34
    par Singer, Susanne , Al-Ibraheem, Akram , Pinto, Monica , Iakovou, Ioannis , Østhus, Arild Andre , Hammerlid, Eva , Locati, Laura Deborah , Gamper, Eva Maria , Ignacio, Juan , Jordan, Susan , Kiyota, Naomi , Buettner, Matthias , Engesser, Deborah , Canotilho, Rita , Ioannidis, Georgios , Husson, Olga , Gama, Ricardo Ribeiro , Fanetti, Giuseppe , Moss, Laura , Inhestern, Johanna , Andry, Guy , Fuehrer, Dagmar , Kulis, Dagmara , Rimmele, Harald , Sykiotis, Gerasimos
    Publication 2023-09
  • The impact of electronic versus paper-based data capture on data collection logistics and on missing scores in thyroid cancer patients
    par Singer, Susanne , Sykiotis, Gerasimos , Al-Ibraheem, Akram , Pinto, Monica , Iakovou, Ioannis , Østhus, Arild Andre , Hammerlid, Eva , Locati, Laura Deborah , Gamper, Eva Maria , Arraras, Juan Ignacio , Jordan, Susan , Buettner, Matthias , Engesser, Deborah , Taylor, Katherine Joyce , Canotilho, Rita , Ioannidis, Georgios , Husson, Olga , Gama, Ricardo Ribeiro , Fanetti, Giuseppe , Moss, Laura , Inhestern, Johanna , Andry, Guy , Rimmele, Harald , Kiyota, Naomi
    Publication 2023
  • Quality of Life in Patients With Hypoparathyroidism After Treatment for Thyroid Cancer
    par Büttner, Matthias , Locati, Laura Deborah , Pinto, Monica , Araújo, Cláudia , Tomaszewska, Iwona I.M. , Kiyota, Naomi , Vidhubala, E. , Brannan, Christine , Hammerlid, Eva , Husson, Olga , Salem, Dina , Ioannidis, Georgios , Gamper, Eva Maria , Arraras, Juan Ignacio , Andry, Guy , Inhestern, Johanna , Theurer, Juliane , Taylor, Katherine , Singer, Susanne
    Publication 2020-12
  • The EORTC module for quality of life in patients with thyroid cancer: Phase III
    par Singer, Susanne , Kiyota, Naomi , Brannan, Christine , Salem, Dina , Gamper, Eva Maria , Arraras, Juan Ignacio , Ioannidis, Georgios , Andry, Guy , Inhestern, Johanna , Grégoire, Vincent , Licitra, Lisa , Jordan, Susan , Locati, Laura Deborah , Pinto, Monica , Tomaszewska, Iwona I.M. , Araújo, Cláudia , Hammerlid, Eva , Vidhubala, E. , Husson, Olga
    Publication 2017-04
  • PRAP study - partial versus radical adrenalectomy in hereditary pheochromocytomas
    par Xu, Kai , Langenhuijsen, Johan Ferdinand , Viëtor, Charlotte Lauren , Feelders, Richard Abraham , Van Ginhoven, Tessa Malaika , Elhassan, Yasir Y.S. , Bioletto, Fabio , Parasiliti-Caprino, Mirko , Zandee, Wouter W.T. , Kruijff, Schelto , Backman, Samuel , Åkerström, Tobias , Pamporaki, Christina , Bechmann, Nicole , Lussey-Lepoutre, Charlotte , Canu, Letizia , Steenaard, Rebecca R.V. , Driessens, Natacha , Velema, Marieke , Dreijerink, Koen K.M.A. , Engelsman, Anton A.F. , Timmers, Henri H.J.L.M. , De Laat, Joanne J.M.
    Publication 2024-09