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Children of non-Western origin with end-stage renal disease in the Netherlands, Belgium and a part of Germany have impaired health-related quality of life compared with Western children

par Schoenmaker, Nikki N.J.;Haverman, Lotte;Tromp, Wilma W.F.;Van Der Lee, Johanna J.H.;Offringa, Martin;Adams, Brigitte ;Bouts, Antonia;Collard, Laure;Cransberg, Karlien;Van Dyck, Maria;Godefroid, Nathalie;Van Hoeck, Koenraad;Koster-Kamphuis, Linda;Lilien, Marc M.R.;Raes, Ann;Taylan, Christina;Grootenhuis, Martha M.A.;Groothoff, Jaap
Référence Nephrology, dialysis, transplantation, 29, 2, page (448-457)
Publication Publié, 2014-02

Article révisé par les pairs

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Résumé :

Background. Many children with end-stage renal disease (ESRD) living in Western Europe are of non-Western European origin. They have unfavourable somatic outcomes compared with ESRD children of Western origin. In this study, we compared the Health-related Quality of Life (HRQoL) of both groups. Methods. All children (5-18 years) with ESRD included in the RICH-Q project (Renal Insufficiency therapy in Children-Quality assessment and improvement) or their parents were asked to complete the generic version of the Paediatric Quality-of-Life Inventory 4.0 (PedsQL). RICH-Q comprises the Netherlands, Belgium and a part of Germany. Children were considered to be of non-Western origin if they or at least one parent was born outside Western-European countries. Impaired HRQoL for children with ESRD of Western or non-Western origin was defined as a PedsQL score less than fifth percentile for healthy Dutch children of Western or non-Western origin, respectively. Results. Of the 259 eligible children, 230 agreed to participate. One hundred and seventy-four children responded (response rate 67%) and 55 (32%) were of non-Western origin. Overall, 31 (56%) of the ESRD children of non-Western origin, and 58 (49%) of Western origin had an impaired total HRQoL score. Total HRQoL scores of children with ESRD of Western origin and non-Western origin were comparable, but scores on emotional functioning and school functioning were lower in non-Western origin (P = 0.004 and 0.01, respectively). The adjusted odds ratios (95% confidence interval) for ESRD children of non-Western origin to have impaired emotional functioning and school functioning, compared with Western origin, were 3.3(1.5-7.1) and 2.2(1.1-4.2), respectively.ConclusionChildren with ESRD of non-Western origin in three Western countries were found to be at risk for impaired HRQoL on emotional and school functioning. These children warrant special attention. © The Author 2013. Published by Oxford University Press on behalf of ERA-EDTA. All rights reserved.