par Massin, Martial 
;Montesanti, Jessica;Gérard, Paul
Référence Acta cardiologica, 61, 4, page (406-410)
Publication Publié, 2006-08
;Montesanti, Jessica;Gérard, Paul Référence Acta cardiologica, 61, 4, page (406-410)
Publication Publié, 2006-08
Article révisé par les pairs
| Résumé : | Objective - We sought to document the prevalence of Internet access and usage patterns among families with children diagnosed with congenital heart disease. Material and methods - A questionnaire was administered to the parents of 509 unselected children with congenital heart disease attending the outpatient cardiac clinic. Results -389 questionnaires were completed. The most common source for acquiring medical information was via the paediatric cardiologist (83%), the family doctor (53%), the general paediatrician (40%) and the Internet (15%). Among the 238 families with Internet access (62%), the most common locations for Internet access were home (74%) and work (33%), and 84 used the Internet to obtain information related to their child's cardiac diagnosis, mostly at the time of diagnosis. Two-thirds of these families considered finding information related to the cardiac diagnosis as easy or very easy, and found this information helpful or very helpful. Conclusion - A quarter of the families uses the Internet to find information about their child's congenital heart disease. Internet use in this patient population is expected to increase and our vig-ilance in providing accurate references and in identifying inaccurate information is of paramount importance. |
